{"id":150040,"date":"2025-03-03T06:51:26","date_gmt":"2025-03-03T06:51:26","guid":{"rendered":"https:\/\/www.nettali.com\/?p=150040"},"modified":"2025-03-03T06:51:26","modified_gmt":"2025-03-03T06:51:26","slug":"journee-internationale-des-maladies-rares-le-ministere-de-la-sante-sensibilise-sur-ces-pathologies","status":"publish","type":"post","link":"https:\/\/www.nettali.com\/2025\/03\/03\/journee-internationale-des-maladies-rares-le-ministere-de-la-sante-sensibilise-sur-ces-pathologies\/","title":{"rendered":"JOURNEE INTERNATIONALE DES MALADIES RARES - Le minist\u00e8re de la sant\u00e9 sensibilise sur ces pathologies"},"content":{"rendered":"<p><strong>\u00a0NETTALI.COM -<\/strong> \u00c0 l\u2019occasion de la Journ\u00e9e internationale des maladies rares, le minist\u00e8re de la Sant\u00e9 et de l\u2019Action sociale a tenu \u00e0 sensibiliser le public sur ces pathologies et les conditions de vie des personnes concern\u00e9es.<\/p>\n<p>\u201c<em>Les maladies rares, bien que touchant un nombre limit\u00e9 de personnes, ont un impact consid\u00e9rable sur la vie des patients et de leurs familles. Parmi cellesci, la maladie de Duchenne et la maladie de Becker sont des dystrophies musculaires g\u00e9n\u00e9tiques qui entra\u00eenent une faiblesse musculaire progressive, affectant principalement les gar\u00e7ons et r\u00e9duisant leur qualit\u00e9 de vie. Les neuropathies d\u00e9g\u00e9n\u00e9ratives, telles que la maladie de Charcot et la maladie de Charcot-Marie-Tooth, sont \u00e9galement des maladies rares qui affectent les nerfs<\/em>\u201d, informe-t-il dans un communiqu\u00e9.<\/p>\n<p>D'autres conditions, comme l\u2019albinisme, qui affecte la pigmentation de la peau, des cheveux et des yeux, m\u00e9ritent \u00e9galement d'\u00eatre mentionn\u00e9es. \u201c<em>En c\u00e9l\u00e9brant cette journ\u00e9e, nous devons continuer \u00e0 sensibiliser, soutenir la recherche et promouvoir l'acc\u00e8s aux soins pour ceux qui vivent avec ces maladies. Ensemble, nous pouvons faire une diff\u00e9rence et apporter un espoir \u00e0 ceux qui en ont besoin<\/em>\u201d, indique la tutelle.<\/p>\n<div class='share-to-whatsapp-wrapper'><div class='share-on-whsp'>PARTAGER SUR : <\/div><a data-text='JOURNEE INTERNATIONALE DES MALADIES RARES - Le minist\u00e8re de la sant\u00e9 sensibilise sur ces pathologies' data-link='https:\/\/www.nettali.com\/2025\/03\/03\/journee-internationale-des-maladies-rares-le-ministere-de-la-sante-sensibilise-sur-ces-pathologies\/' class='whatsapp-button whatsapp-share'>WhatsApp<\/a><div class='clear '><\/div><\/div>","protected":false},"excerpt":{"rendered":"<p>\u00a0NETTALI.COM - \u00c0 l\u2019occasion de la Journ\u00e9e internationale des maladies rares, le minist\u00e8re de la Sant\u00e9 et de l\u2019Action sociale a tenu \u00e0 sensibiliser le public sur ces pathologies et les conditions de vie des personnes concern\u00e9es. \u201cLes maladies rares, bien que touchant un nombre limit\u00e9 de personnes, ont un impact consid\u00e9rable sur la vie [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":150041,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":""},"categories":[22],"tags":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v17.8 (Yoast SEO v17.8) - 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